Everyday Life, Invisible Illness

Today…

So today I slept and slept and slept. Now I find myself awake. This can be pretty standard with someone who is chronically ill but the fatigue has been incredibly worse.

Can anyone else relate to this?

When I first started taking my thyroid meds, I noticed the difference almost immediately. My fatigue was so much better that I started to feel more like myself again. It was amazing!

Now almost 2 years later, I am back to square one again.

Any tips for this fatigue?

With the fatigue comes shame and embarrassment. You don’t want people like your friends, family or significant other to think you’re just being lazy since they don’t understand fatigue and they just think your tired. Let me just say the fatigue I deal with is not just tired. When your whole body feels like it weighs a ton and it’s hard to get up just to use that bathroom, that is fatigue not just tired. I would love to just be tired.

Please share your stories below! I would love to hear from you.

4 thoughts on “Today…”

  1. I totally know where you’re coming from. I have struggled with this for 8 years. a few years ago I made the switch to desiccated thyroid and the difference was amazing! unfortunately, that only lasted a year and I was back to “sloth mode”.
    I’m back on synthetic hormones now (I was told I had to go back to my primary, or risk losing coverage on thyroid issues due to ACA repeal) and back to new labs and new doses every 8 weeks.
    It’s embarrassing … I’m always exhausted. I set several alarms thru the day so I can pick up my kids and take them to practices, and I don’t struggle with sleep at night! I make dinner maybe once a week and my house is a disaster.
    I don’t know what to do any more

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    1. Same here. I have been on Armour Thyroid the past 2 years and it worked great till the last 4-5 months. I don’t struggle with sleep at night either! I can stay up all night even though the entire day I was a mess. Or I can get to bed around 10pm and get a solid nights sleep and still wake up like I haven’t slept at all.

      I have researched everything from Hashimoto’s to Lupus. When you have so many symptoms it is easy to fit into everything. I have a doctor appt in December and I will be bringing this up to him and see what he says. Your doctor changed your dose every 8 weeks? Mine hasn’t changed my dose since I have been on it. Maybe he will now.

      Hopefully the ACA doesn’t get repealed! My husband and I used the ACA for a couple of months and it was a godsend. It worked really well for us.

      It is embarrassing because unless someone has dealt with it people have no clue what your going through and how bad it can get. I have heard it all from “suck it up” to “stop being lazy”. Luckily my husband gets it and completely understands since he has seen what it does to me first hand. I still feel bad though not being able to cook dinner, clean our house, etc.

      Please keep me posted on how things are going or feel free to vent because I know I will be and I am sure you need to vent to someone who actually gets it!

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      1. yes, my doctor doesn’t base my dose entirely off the TSH results, he listens to my symptoms as well. he currently has me on T4 and T3 … he WANTS me to feel better, which is what I love about him …. it’s just an exhausting process.
        Come January I think I’m going to have him run an adrenal test and possibly pursue psych meds temporarily. I have bipolar disorder as well and I’m wondering if the thyroid issue has pushed me into a depression that I just can’t pull out of.
        keep me updated as well! it’s definitely nice to have someone that not only understands, but to bounce around ideas with.

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      2. That is awesome that you found a doctor that listens to you and cares. Seems like that’s half the battle.

        I have adrenal fatigue, stage 5 and fibromyalgia. With the hypothyroidism my doctor said “with all of these causing fatigue as the main symptom, I don’t know how you get out of bed.”

        Adrenal fatigue messes with everything as does the thyroid. Both of them mess with hormones so it makes sense that you would be more depressed lately. It’s hard not to be depressed when you feel worthless cause you can’t do anything. That’s how I feel at times.

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